Welcome to the Parents page!

We’ve created this page to share experiences of raising a child with a limb difference.  We welcome expecting or new parents to come read and learn and, hopefully, share your own experiences sometime down the road.

• It’s About Changing Your Perspective

  One of the very first things you are going to think about when you learn your child will have a limb difference is what your child is not going to be able to do.  That is understandable and human nature.  It is also a waste of time and energy – and you should do your best to get rid of those thoughts immediately.  Every single one of us is predisposed with things we can and cannot do.  It’s just the cards we are dealt in life.  What you need to do is focus on what your child can do.

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• Our Story – Finding Out

  My wife, Kelley, and I found out about Clay’s condition shortly after his 20-week ultrasound.   Like his older sister, Sierra, we decided to wait to find out the baby’s gender until they were born.  So, whenever we went to ultrasounds we very purposely avoided spending too much timing looking at the screen.  At the 20-week ultrasound for Clay, things did seem a bit off based on the behavior of the ultrasound technician.  But, we did not find anything out at this point.  Our intuition was confirmed when we were told to schedule another pre-natal ultrasound.   This was concerning, but we were assured that most of the time these were precautionary.  In our case, we found out there was an issue with Clay’s development.  He was missing his right leg from just above his right knee.

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